PatientsLikeMe

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PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes.

07/16/2026

Confused by your kidney lab results? 🩺

Swipe through to learn what eGFR, creatinine, protein, and albumin mean and why they're important for your kidney health. 💙

07/15/2026

Kathleen took on the Camino de Santiago and she’s sharing the real story behind every step, challenge, adaptation, and unforgettable moment.

Join PatientsLikeMe to read the full details of her journey and discover more inspiring stories from people living life on their own terms.

07/14/2026

"I always thought I was just clumsy."

Kathleen shares the subtle symptoms she noticed before being diagnosed with Friedrich's Ataxia. 💙

07/10/2026

🗓 Save the Date 🗓

Join Dr. Amanda Powell on July 22nd at 1 pm ET, as she unpacks the science behind the fatigue, cravings, and weight changes so many women experience in midlife.

Learn why these shifts happen, what's really driving them, and simple, practical strategies to help you feel more energized and in control of your health and well-being 🙌

07/07/2026

Brain fog? Midday energy crashes? 🫠

Perimenopause and menopause can change the way you work, but you don't have to push through. Learning to work with your energy, instead of against it, can make all the difference.

Learn simple tips to help you work with your body, not against it: https://bit.ly/4f06Ktd

06/26/2026

You don't always need an entire self-care day to take care of yourself. 💙 Sometimes it's the little things that help you feel like you again. A few tiny routines that can make a difference:
✨ Step outside for a few minutes
☕ Drink your coffee while it's still hot
🎵 Put on your favorite song
🧘 Stretch for a minute or two
💬 Text a friend just to say hi

What helps you feel more like yourself after a day caring for your loved one?

06/24/2026

When you're feeling depressed, doing a little movement can make you feel better. Try these gentle movements from bed:
✨ Ankle circles
✨ Shoulder rolls
✨ Knee hugs
✨ Arm circles
✨ Glute squeezes
✨ Deep breathing
✨ Gentle stretching

If all you do today is one minute of movement, that still counts. You got this, and you're not alone. 💜

06/18/2026

A chronic kidney disease (CKD) diagnosis can feel overwhelming. If you're wondering what comes next, you're not alone.

Here are a few tips from our community 🩵

• Take it one day at a time, you don't need to figure everything out right away.
• Write down questions as they come to you so you don't forget them at your next appointment.
• Try not to go down internet rabbit holes; stick to trusted sources and your care team for information.
• Focus on small changes that feel manageable rather than overhauling your entire lifestyle overnight.
• Connect with others who have CKD. Sometimes the best advice comes from people who have been through it themselves.

If you've been diagnosed with CKD, what helped you feel less overwhelmed in those early days?

06/17/2026

If you’ve ever felt caregiver guilt for taking time for yourself, this is your reminder: you don’t have to earn rest.

Stop feeling guilty for taking care of yourself 💕

06/15/2026

Being a mom with Friedreich's Ataxia doesn't always look the way Tiffany imagined it would. 💕

In this honest and heartfelt video, she shares how FA has changed her approach to parenting, the importance of accepting help, and why she chooses to focus on the love, compassion, and perspective she can give her children instead of the things she can't do.

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Charlestown, MA

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